I was lucky enough to take photos of sweet baby Parker and his family today!
Parker has myelomeningocele the most common and severe form of spina bifida, a defect of the spine in which part of the spinal cord and its meninges are exposed through a gap in the backbone.
Open fetal surgery is a delicate surgical procedure where fetal surgeons open the uterus and close the opening in the baby’s back while they are still in the womb.
Because spinal cord damage is progressive during gestation, prenatal repair of myelomeningocele may prevent further damage.
It is is an extremely complex procedure available only to qualified candidates, fetal surgery for myelomeningocele requires significant commitment on the part of mothers who choose to go forward with it and extensive surgical experience to perform successfully.
Parker and Jessica underwent Open Fetal surgery in Orlando, Winnie Palmer Hospital for Women & Babies being the 4th patients ever to have the surgery in the state.
Surgery took place at 25 weeks gestation and Parker made his arrival at 37 weeks gestation, 2/6/19 being the first ever baby with Spina Bifida in 70 years to be born at Winnie Palmer and not have to be admitted into the neonatal intensive care unit.
“Its been said that life can be seen in comparison to a book. That comparison for some can be as basic as a beginning middle and end and for others as complex as chapters each with its own lessons. For our story and us it’s the latter and this chapter in particular pertains to the addition of our son with not just one lesson but a variety all of which prove that love is what matters most